This is for every one of us suffering from chronic pain and making it through another day. Stay strong and pat yourself on the back for being a warrior today.
Wow, I identify with all nine of these with my chronic migraines
As many as a third of Americans suffer from chronic pain—a full third! If you’re one of those people for whom low back pain, headaches, arthritis, or one of a long list of other conditions make your daily life a struggle, these nine experiences probably ring way too true.
http://www.prevention.com/health/symptoms-chronic-pain provides details.
Back pain has millions of sufferers and traveling can be horrendous. Sitting in one position for a long flight or lugging heavy luggage around just increases the misery, but who doesn’t wish to travel and explore the world?
1. Schedule your flights wisely
Traveling with back pain can be miserable, especially on a plane. You are sometimes the one stuck in an economy-class seat, with little room, leaving your spine feeling out of whack. To minimize time in the air, some travelers choose to book non-stop flights if available.
2. Get up and move, move, move
I was intrigued by this article found on Flipboard.com about the history of Fibromyalgia.
You sometimes hear fibromyalgia referred to as a “fad diagnosis” or “new disease,” but the truth is that fibromyalgia is far from new. It has centuries of history, with multiple name changes and discarded theories along the way.
While it hasn’t always been accepted by the medical community, and today its acceptance isn’t universal, fibromyalgia has come a long way and current research continues to offer proof that it’s a very real physiological illness.
This article is lengthy and continues @ Health Care Guide
As a chronic migraine sufferer who has never given birth, I’m incapable of comparing pain. On a scale of 1-10 (as doctors insist on using), my excruciating pain sometimes exceeds 10+, but, I can envision childbirth close or equal. Let’s face it, any horrible pain is a horrible pain.
(people at random said)
3. Trigeminal Neuralgia
5. Serious Burns
6. Pudendal Neuralgia
“Living in Stigma” connects with everyone coping with chronic pain, mental illness, and all invisible illnesses.
My blog “Living in Stigma” was launched in 2007 and originally dedicated to all of us struggling with mental illness. I felt as if I was living in stigma with my own major depression.
Many forms of mental illness comprise of Depression, Bipolar Disorder, Personality Disorders, PTSD, Eating Disorders, Alzheimer’s disease and much more.
I struggle with both mental illness and chronic migraines, and with news articles, social media, research and valued readers sharing comments and opinions on my blog, it’s a reality that invisible illnesses such as fibromyalgia, lupus, headaches, recurring back and leg pain, and so many more are also a vast portion of invisible illness stigma. Continue reading “Welcome – Connecting With Everyone Struggling With Invisible Illnesses”
It’s not just in our head. The pain is there and always would be even if there is no apparent reason for it. Our pain is real and will not just go away after we take some pills for a week or two. It would always be there and we have learned to live with it. Here are 16 more things we wish you knew about us!
You think you can imagine our pain? Now multiply that amount by 10. No matter how sympathetic you are, studies have proved that people tend to underestimate other people’s pain. Chronic pain by default is hard to imagine unless you have experienced it in your life. It’s invisible, but it is always there. We urge health care not out of hypochondria or the need for attention, but because of our severe physical state.
We use the Spoon Theory. We have a limited amount of spoons each day we could use for different actions. Getting up, getting dressed, taking a shower, driving, walking, picking up the phone — each action requires us to use one of our precious spoons. On good days, we finish with a few spoons left so we can do something fun. On bad days, we borrow spoons from the next day and need extra recovery afterward. So if we suddenly cancel our plans with you or tell we can’t do it now — it’s just because we ran out of spoons today. Try to understand this.
Sadly, a lot of health care pros lack knowledge in pain management because it is rarely part of their training. We often visit numerous specialists before receiving a proper diagnosis and wait months to years to see a real pain specialist for treatment. Doctors often fall victim to the cognitive error of underestimating another’s pain and a small number of doctors are willing to take the legal risks involved in prescribing powerful pain pills.
Same goes with the nurses. Finding a good one who can really understand and help us relieve the pain is hard! Luckily, there are some online schools like Sacred Heart University that are training future nurse leaders to overcome these issues in the future and provide better care for patients.
While you may think it’s crazy, we’re willing to travel further to find a good nurse with this kind of training and rave about it when we find one.
Patients coping with the complex (pain disorder) fibromyalgia often have difficulty sleeping, and a new study published in The Journal of Pain reports that despite the negative quality of life implications, poor sleep is not a significant predictor of fibromyalgia pain intensity and duration.
The complexity of fibromyalgia as a pain disorder is rooted in the variable, patient-to-patient, influence of physical, psychological, social factors that contribute to clinical pain, and their influence often is difficult to understand. Previous research has shown that variables such as negative mood and the number of localized pain areas are significant predictors of clinical pain in fibromyalgia patients.
This article was found on HealthyPlace.com (Coping & Depression blog)
One of the most common symptoms of depression is a change in appetite. People who have depression either lose their appetite and eat less than they did before, or else their appetite increases and they eat more than they did before their depression started. For me, my appetite has lessened but it’s affected me a lot more than a simple reduction of hunger pangs. Depression and lack of hunger can be distressing.
Depression affects my eating habits mostly by making me apathetic about food. Flavours feel dulled so I never really enjoy anything that I eat. I opt for really sour candy, ice cream or whatever seems tastiest. I fill up on junk food and then don’t care about fruits and vegetables.
If this research is accurate, well then I am pissed off. For me this really isn’t new news, I’ve heard this before with painkillers, but for all of us who struggle with chronic pain on a daily basis, just searching for a moment of relief we encounter yet another rip-off with a pricey medication.
Research suggests patients are paying three times too much, as Nurofen is banned in Australia for selling identical painkillers for specific ailments
One of Britain’s biggest painkiller brands, Nurofen, uses identical ingredients in pills that claim to tackle different ailments, a court has found, prompting experts to warn that patients are overpaying for so-called “targeted” medicines.
Nurofen offers different packs of branded drugs depending on whether the buyer is suffering from migraines, period pains, tension headaches or back pain.
It’s targeted pills are different to standard Nurofen as they contain salts that break down more quickly in the digestive system, providing faster pain relief. They are also more expensive.
But a court in Australia ruled that the products should be removed from the shelves there after finding that, apart from the packaging, all the targeted pills were identical to each other.
Each contains exactly the same amount of ibuprofen, is put together with the same ingredients – and even has the same drug licensing code.
Separately an investigation by the consumer group found that the Nurofen “targeted” tablets contained the same drugs, in the same quantities, as pharmacy and supermarket own-brand versions that were a third of the price.
Richard Headland, editor of consumer group Which?, said: “You might think Nurofen Migraine Pain and Nurofen Tension Headache caplets would target your migraine and tension headaches respectively, but you’d be wrong: ibuprofen can’t target pain in specific body parts.”
With the fast-acting Nurofen painkiller range due to will stay on sale in Britain, he advised shoppers to opt for cheaper versions in pharmacies and supermarkets.
Each caplet of Nurofen Migraine Pain contains 342mg of ibuprofen lysine – a fast-acting version of ordinary ibuprofen – and costs 22p. Nurofen Tension Headache caplets contain the same ingredients but cost 23p.
By contrast, Asda Migraine Relief also contains 342mg of Ibuprofen Lysine, but costs 11p. Wilko Express Pain Relief containing the same quantity of ibuprofen lysine cost just 8p – around a third of the price for the Nurofen version.
Researchers at consumer group Which? said the ingredient list in Nurofen was slightly different to own-brand painkillers, due to different binding ingredients that make up the pill. But crucially they contained the same amount of “active” ingredients to dull pain.
Mr Headland said: “It’s a waste of money to buy so-called targeted painkillers, and potentially dangerous as you might be misled into taking a double dose, thinking that they’re different medicines.”
I’ve included two articles on the subject of ‘Daith Piercing’, a positive and negative. Personally, I have never heard of this procedure before now, however, upon reading these articles, I’ve decided this wouldn’t be for me.
fourstateshomepage – by Kheslleen Dimanche ~ According to the Migraine Research Foundation, migraines are an extraordinarily common disease that affects 38 million people in the United States. After several people posted their social media accounts that daith piercing has brought them relief, others are jumping for the fix.
“I’ve had a constant migraine for two and half to three years, and I heard it helps,” said Jenny Wagner, received daith piercing.
Wagner says since struggling with migraines, she and her mother felt piercing the daith was worth a try.
“Spending over a thousand dollars a month on doctors and then spending $40 on a piercing is way better,” said Wagner. She says prior to getting the piercing, she tried almost everything to get relief and nothing seemed to work.
“Some medication didn’t do anything, some made me like end up in the ER,” Wagner explained.
I was never aware of this type of therapy so thought an interesting topic to include for information. It especially received my attention when it mentioned chronic pain such as migraine/headache treatment.
Biofeedback therapy involves training patients to control physiological processes such as muscle tension, blood pressure, or heart rate.
These processes usually occur involuntarily, however, patients who receive help from a biofeedback therapist can learn how to completely manipulate them at will.
The three most common types of biofeedback therapy are:
Biofeedback is particularly effective at treating conditions brought on by severe stress. When a person is stressed, their internal processes such as blood pressure can become irregular. Biofeedback therapy teaches these patients certain relaxation and mental exercises which can alleviate their symptoms.
Therapists can measure a patient’s performance by attaching electrodes to their skin and displaying the processes on a monitor. Eventually patients learn how to control these processes without the need to be monitored.
During a biofeedback session, electrodes will be attached to the patient’s skin, which sends information to a monitoring box. The biofeedback therapist reads the measurements and through trial and error singles out mental activities that help regulate the patient’s bodily processes.
Sessions are typically less than an hour long – most people will begin to see positive results after 8 sessions. However, some patients may need a as many as 50 sessions.
The remainder of this post @
This describes many chronic illnesses, too many to list. We’re used to appearing “well” on the outside, yet on the inside, it’s indescribable hell.
This describes my migraines lately. 😦
In EveryDayHealth.com, they report that more women than ever are dying from painkiller overdoses. This article was written by Dr. Sanjay Gupta and asks, “How can you spot signs of drug abuse in a loved one?
Americans’ abuse of prescription painkillers has reached epidemic proportions, according to the U.S. Centers for Disease Control and Prevention. The CDC estimates that 15,000 people die every year in this country from overdoses involving opioid or narcotic pain relievers.
I’m always looking for other reasons that cause migraines or headaches and came across this:
Chiari malformation is a congenital (i.e. present at birth) structural problem at the base of the skull that affects the brain and spinal cord. In fact it is not a malformation of the brain at all. More accurately, the lower portion of the skull, the portion known as the posterior fossa, is too small to accommodate the lower portion of the brain. As a result, a portion of the cerebellum called the tonsils is forced to protrude into the spinal column. This results in compression of the brain stem and spinal cord and interferes with the flow of spinal fluid. It is the compression of the brain stem and spinal cord that is primarily responsible for the symptoms. We have learned that compression that is sufficient to cause symptoms can occur even when the cerebellar tonsils protrude by as little as 1 millimeter.
This for me is hiding my depression and not showing how badly my head is throbbing due to horrible chronic migraines. Perhaps this is why people question why I remain on disability, as I appear to “look well”. I believe people have grown tired of my “headache” woes, as they seem to change the subject fast.
There’s even a misunderstanding with the chronic pain people endure due to fibromyalgia, some people don’t see it as a disability.
Be kind, don’t judge.
This could be said to anyone struggling with chronic pain, including mental illness where the pain is felt so heavily on the inside.
The WashingtonTimes.com reported that research from Sweden has shed some light as to why women are more likely to suffer from depression, chronic pain (CPS) and fibromyalgia syndrome (FMS) than men. Also the same study discovered why women are prone to depression and mood swings from pre-menstrual syndrome (PMS) and post-partum depression.
Serotonin production, re-absorption and normal levels in many women are not sufficient and wreak havoc on the mind and bodies of those affected. The effect on female hormones is broadly significant. Serotonin, known as the ‘happy hormone,’ plays a significant role in pain management.
Chronic or clinical depression can be causation of chronic pain. Chronic pain can lead to chronic or clinical depression, so healthy levels of serotonin play a significant role in managing depression and chronic pain.